Patient-Reported Outcomes studies

Our researchers use validated survey instruments to learn more from patients related to their feelings about and ability to function with their specific health condition. The primary goal of this research is to increase and improve communication between patients and caregivers, and to help them make better informed health care decisions.

A Registry to Improve Care and Research in Lung Cancer Screening

This is an award to demonstrate the feasibility of developing a registry of individuals who undergo lung cancer screening with low-dose CT.

Principal Investigator:

Michael K. Gould, MD, MS

Funding Source:

Cancer Research Network (CRN)

Funding Years:

2014 - 2016

Research Categories:

,

Developing a Risk Prediction Model and Evaluating the Economic Burden of Ankylosing Spondylitis in an Integrated Healthcare System

The primary aim is to develop an ankylosing spondylitis risk prediction model using data from Kaiser’s electronic medical records (EMR). We will also evaluate medical expenditure, health related quality of life and work productivity losses associated with ankylosing spondylitis.

Principal Investigator:

Aniket A. Kawatkar, PhD, MS

Funding Source:

Novartis Pharmaceuticals Corporation

Funding Years:

2020 - 2022

Real World Effectiveness and Economic Impact of Subcutaneous Methotrexate compared to Oral Methotrexate Treatment for Rheumatoid Arthritis

This prospective study will evaluate the real-world effectiveness of subcutaneous vs. oral methotrexate treatment on disease activity and functional status of rheumatoid arthritis patients. We will also evaluate effectiveness on patient centered outcomes, treatment adherence, cost, and work productivity. Lastly, using a discrete choice experiment, we will estimate patient’s valuation of these outcomes and their willingness to pay.

Principal Investigator:

Aniket A. Kawatkar, PhD, MS

Funding Source:

Medac Pharma, Inc.

Funding Years:

2016

Sleep Disturbance, Inflammation & Cellular Aging in Breast Cancer Survivors (STRIVE 2)

The goal of this prospective recruitment study is to evaluate longitudinal differences in the rates of change in inflammation and telomere erosion in breast cancer survivors vs. non-cancer comparison women to determine if such molecular changes are due to cancer biology, or its treatment, or consequences of aging.

Principal Investigator:

Reina Haque, PhD, MPH

Funding Source:

National Cancer Institute (NCI)

Funding Years:

2016 - 2019

Sleep Inflammation and Depression Occurrence in Breast Cancer Survivors (STRIVE1)

The aim of this prospective study is to examine the association between sleep disturbance, cellular and genomic markers of inflammation, and depression occurrence in breast cancer survivors.

Site Principal Investigator:

Reina Haque, PhD, MPH

Funding Source:

National Cancer Institute (NCI)

Funding Years:

2012 - 2017